The doctor called tonight with the pathology results. It is called Epithelioid Sarcoma - but before you google it I will warn you that some of the information out there is quite scary. The doctor warned me of this (after I asked him 2 times to spell it for me) - and told me while they are taking this very seriously, Paige does have some factors going her way. Paige's tumor was small and it hadn't attached to anything. He called after hours so he couldn't get an appointment set up for us, but told us they would call first thing in the morning to set up a day and time. He said (more than once) that they would get us up there this week. So since I like to plan - I have come up with a plan (but like many other plans of mine - it might change) and I am thinking that we will drive up tomorrow, go in for tests early on Thursday (they will do an MRI, a bone scan and a chest CT scan) and then they will do the surgery on Friday.
I am very thankful that they now know what it is and are moving forward quickly with treatments. I am also very thankful for the gospel and all the answers and comfort that it provides. I wish I were a wee bit stronger right now - I don't like to be scared, but ultimately I do know that miracles do happen and I want to have the faith that produces those miracles. Thank you again for all your prayers - I have incredible family and friends!!!
3 years ago
5 comments:
Heidi, you are the strongest woman I know and are truely an inspiration to me! I love you so much and will have a prayer in my heart all week for you and Paige as you go through the hardest thing you have faced. Make sure you wear a necklace that Paige can play with, for me! I Love You!
I understand about not liking being scared! Remember that you are loved. I think about you all the time. We will continue to pray for you and Paige.
Just when I think you can't be any more inspirational, you are. You are amazing, have a strength I can only hope for and a faith that can surely move mountains. We will be just down the street as of Saturday - please call if you need somewhere for your older kids to play, need me to swing by and get them, whatever. You are in our prayers.
That is good you have a name to it now. Hang in there!
Heidi, you and your family, especially little Paige, are in our prayers! I know we can't do much since we're so far away, but we can pray for you! Thank goodness you know what it is now and can go from there! Thanks for all the spiritual inspiration throughout all of this! As Brittnie said, you are truly an strong and amazing woman!
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